Cysteamine
Generic name: Cysteamine
Drug class:
Miscellaneous uncategorized agents
Usage of Cysteamine
Cysteamine works by reducing the amount of cystine (an amino acid) in the body.
Cysteamine is used to treat nephropathic cystinosis (NEF-roe-PATH-ik SIS-tin-OH-sis), a rare genetic condition that causes a build-up of cystine in the kidneys and other organs. Too much cystine can cause kidney failure or other medical problems.
Cysteamine is for use in adults and children, but Procysbi should not be given to a child younger than 1 year old.
Cysteamine may also be used for purposes not listed in this medication guide.
Cysteamine side effects
Get emergency medical help if you have signs of an allergic reaction (hives, difficult breathing, swelling in your face or throat) or a severe skin reaction (fever, sore throat, burning eyes, skin pain, red or purple skin rash with blistering and peeling).
Call your doctor at once if you have any of these side effects (some of these may be caused by your cystinosis disorder and not by cysteamine):
Common side effects of cysteamine may include:
This is not a complete list of side effects and others may occur. Call your doctor for medical advice about side effects. You may report side effects to FDA at 1-800-FDA-1088.
Before taking Cysteamine
You should not use cysteamine if you are allergic to cysteamine or penicillamine.
Tell your doctor if you have ever had:
It is not known whether this medicine will harm an unborn baby. Tell your doctor if you are pregnant or plan to become pregnant.
You should not breastfeed while using this medicine.
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How to use Cysteamine
Follow all directions on your prescription label and read all medication guides or instruction sheets. Your doctor may occasionally change your dose. Use the medicine exactly as directed.
Swallow the capsule whole and do not crush or chew it.
If you cannot swallow a capsule whole, carefully follow the patient instructions for opening the capsule and mixing the medicine with certain foods. Your doctor may recommend that you use cysteamine oral granules.
Do not crush or chew oral granules.
Procysbi works best if you take it without food, at least 30 minutes before or 2 hours after a meal. If you cannot take the medicine without eating, eat only a small amount (1/2 cup) of food within 1 hour before or 1 hour after you take the medicine.
Whether you take the medicine with or without food, take it the same way each time.
To mix the oral granules or medicine from a capsule with food:
Procysbi also comes with instructions for giving the mixture through a gastronomy tube (14 French or larger).
Cysteamine doses are based on weight (especially in children and teenagers). Your dose needs may change if you gain or lose weight.
You will need frequent medical tests.
You should not stop using cysteamine without your doctor's advice. Stopping suddenly may make your condition worse.
Cystinosis is often treated with a combination of drugs, including vitamin and mineral supplements. Use all medications as directed and read all medication guides you receive. Do not change your dose or dosing schedule without your doctor's advice.
Store at room temperature away from moisture, heat, and light.
Warnings
Follow all directions on your medicine label and package. Tell each of your healthcare providers about all your medical conditions, allergies, and all medicines you use.
What other drugs will affect Cysteamine
Take Procysbi at least 1 hour before or 1 hour after taking any medicine that contains bicarbonate or carbonate.
Other drugs may affect cysteamine, including prescription and over-the-counter medicines, vitamins, and herbal products. Tell your doctor about all your current medicines and any medicine you start or stop using.
Disclaimer
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The absence of a warning for a given drug or drug combination in no way should be construed to indicate that the drug or drug combination is safe, effective or appropriate for any given patient. Drugslib.com does not assume any responsibility for any aspect of healthcare administered with the aid of information Drugslib.com provides. The information contained herein is not intended to cover all possible uses, directions, precautions, warnings, drug interactions, allergic reactions, or adverse effects. If you have questions about the drugs you are taking, check with your doctor, nurse or pharmacist.
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